Description
Alliance for rare disease patients and patient organizations in Latvia advocating for accessible and qualitative health care services.
Uniting patients and patient organizations, empowering and building their capacity. Advocating and networking to improve access to health care in Latvia and abroad. Policy development and monitoring. Cooperating with other stakeholders in the field. Educating and raising awareness about rare diseases in public.
Competence and Expertise Offered
– health care systems and patient pathways
– rare diseases
– cooperation and network building
– patient advocacy
– awareness and education campaigns
Expertise sought
– cooperation
– innovation
– education